Equality Act 2010 Guidance: Gynaecological Conditions
I congratulate my hon. Friend the Member for Hampstead and Highgate (Tulip Siddiq) on securing this debate. I speak as the chair of the APPG on PMOS and as a woman living with PMOS and endometriosis—I feel like I somehow won the cup when I got both of those. One in eight women in the UK suffer from PMOS, yet despite how common it is, it remains poorly understood, underdiagnosed and too often overlooked. The World Health Organisation estimates that up to 70% of women affected globally remain undiagnosed. Both of those figures are women waiting for answers. For me, diagnosis took over 18 years. During those years I developed an eating disorder—I became bulimic—experienced depression and lost confidence. I passed out in sixth form on so many occasions. I lost the feeling in my legs and when I went to the GP, he told me over and over again, “It’s all part and parcel of being a woman. Take some paracetamols.” I share that because we must understand what delayed diagnosis costs. It reaches into your relationship with your food, mental health, working life and sense of self. Failure to diagnose does not make the condition disappear; it leaves women managing its consequences without the explanation, treatment or support they deserve. PMOS affects more than fertility. It can affect metabolism, periods and mental health and it increases the risk of conditions including type 2 diabetes. Earlier diagnosis provides an opportunity to manage those risks and offer support sooner. Instead, women can spend years questioning themselves when the system should be asking the right questions. Those failures do not fall equally. The condition disproportionately affects women from south Asian and black backgrounds and those on lower incomes, yet access to diagnosis and support remains inconsistent. Without greater awareness, existing inequalities in health can translate into inequalities in employment, career progression and economic opportunity. I cannot tell hon. Members the amount of times I have had a sleepless night before an exam, a driving test or anything important, worried that I would be too ill to stand up and do it. A woman’s income, ethnicity or postcode should never determine whether she is heard or helped. We must tackle racism, language barriers and unequal access to care. For someone on an insecure contract, attending an appointment can mean losing wages, and asking for flexibility can feel like risking her job. The advice to seek support means little if that support is beyond her reach. I ask my hon. Friend the Minister to provide for early diagnosis, access to psychological support, targeted action on inequalities and clear workplace guidance. Changing the name of polycystic ovary syndrome to polyendocrine metabolic ovarian syndrome must be matched by changing women’s experience. I cannot get those 18 years back, but we can stop another generation enduring the same wait, the same pain and the same anguish. Greater awareness of PMOS and endometriosis in the workplace can help to ensure that women are supported, valued and able to thrive at work, rather than being forced to choose between managing their health and progressing in their careers. No woman should have to lose her health, her confidence or her future before the system finally decides to believe her and act.