Equality Act 2010 Guidance: Gynaecological Conditions
It is a pleasure to serve under your chairship, Ms Jardine. I, too, congratulate the hon. Member for Hampstead and Highgate (Tulip Siddiq) on securing this really important debate. I would also like to join other Members from across the House in congratulating and commending the campaigners, some of whom are in the Gallery, on the incredible work that they do on behalf of not just themselves but all women across the country and, indeed, internationally. Millions of women face the difficulty and pain of managing gynaecological conditions such as endometriosis, adenomyosis, fibroids, PMDD—the list goes on and on. It is obvious that more must be done to rapidly speed up diagnosis times and provide effective care and accommodations to those with these often incredibly debilitating conditions. Their impacts on women’s everyday lives extend, as we have heard, to education, employment and fertility. Some women leave work altogether because they cannot obtain the support that they need. We cannot—indeed, must not—accept that as normal. My Liberal Democrat colleagues and I believe that there would be merit in dealing with these conditions in the same way as cancer, HIV and multiple sclerosis, which are deemed to be disabilities, under the Equality Act 2010, from the point of diagnosis and without the need to meet the functional test. I therefore urge the Government to examine that proposal further. As we have heard, however, even getting a diagnosis is appallingly slow. Women’s symptoms are too often normalised or dismissed across all health conditions. I have heard outrageous stories of women’s persistent health concerns being dismissed with sometimes incredibly sexist comments attached. One young woman described to me fairly recently a particularly awful example. She was explaining to a consultant how she felt physically sick because of her persistent stomach pain, in this case while she was out shopping with friends, only to be dismissed by the doctor, who replied, “I often feel sick when I go shopping with my wife”—[Interruption.] There are groans from the Gallery. That actually happened. With there being grossly outdated and misplaced attitudes like this, it is hardly surprising that it takes an average of almost 10 years to receive an endometriosis diagnosis in the UK. Recent research by Endometriosis UK has shone a light on the extent of the impact of this condition. In a recent report, the charity found that 97% of those surveyed worked while experiencing severe pain. It is no wonder that almost half of all those with endometriosis said that it had made it difficult to progress in their career, while 28% had had to leave their job altogether because of it. The same survey found that employers overwhelmingly want to help, but with there being little guidance and with employers facing the everyday pressures of running a business, the support for these women often just is not there. That is costing women—in pain, in missed career opportunities and, ultimately, in dignity. My Liberal Democrat colleagues and I have written to Baroness Merron, the Women’s Health Minister, on several occasions to raise the urgent need to improve care for women with gynaecological conditions. The Government know that health-related economic inactivity costs the UK £212 billion every year. Even if we think about this only in such crude economic terms, the action needed pays for itself. Indeed, one NHS Confederation report found that for every £1 spent on obstetrics and gynaecology, the estimated return on investment was £11. It follows that tackling NHS waiting times for gynaecological services should be a top priority. That is why it was so disappointing that the women’s health strategy contained no specific, measurable, time-bound target to reduce the backlogs in endometriosis care, while the NHS 10-year health plan did not include endometriosis, adenomyosis, PMOS or fibroids in its prevention agenda. Without there being clear direction from Government, we risk consigning more women to even longer waits and prolonged, unnecessary pain. That is why I was proud that the Liberal Democrats tabled to the Health Bill a new clause that would have ensured that the average wait time for endometriosis and other women-specific conditions was no longer than the average wait time for other elective conditions in the NHS. That would be a meaningful step towards equality in women’s healthcare. Finally, we know that what gets measured gets done in the NHS. I hope that the Minister takes this away and conducts a serious examination of adding gynaecological conditions to the Equality Act 2010 guidance. We owe it to these women to do all we can to tackle this injustice.