Rare Cancers Bill
I am very grateful to my hon. Friend for his unprompted comments. He will know that the funding is sufficient to staff the review only for one year. If there is only funding for one year, why does it take three?
Showing every spoken contribution, including 5,779 under 12 words. Hide short remarks
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Rare Cancers Bill
Is it possible to respond, Madam Deputy Speaker?
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Rare Cancers Bill
I will respond briefly to the debate. In so doing, I thank my hon. Friends the Members for Hinckley and Bosworth (Dr Evans) and for Farnham and Bordon (Gregory Stafford) for their contributions. I listened for what the Minister would say in response to my point about NHS England, but I did not hear the expression “NHS England” come from between his lips, and I wonder whether that was an oversight or whether it was left out of his brief deliberately by officials from NHS England. Amendment 8 specifically deals with NHS England, and my hon. Friend the Member for Hinckley and Bosworth referred to it. Does the Minister’s reluctance to intervene at this stage show that he is in denial about the policy in relation to NHS England? I presume that he is in such denial. We have had a classic example from the Minister of why the civil service is ruling okay, because it can come forward with a valid objection to every possible suggested alternative and amendment. I do not think that this attitude will be very helpful to the people we are trying to help through the Bill—namely, those who are suffering from rare cancers and who want us to make progress in this area. I will not press any of these amendments to a vote, but I hope that when the Bill gets to the other place there will be more persistent probing, particularly on the issues around NHS England and the definitions. To give credit where it is due, I was pleased with what the Minister said about the specialty lead. As discussed, we do not need legislation for this anyway. He said he wants to have that dealt with promptly but is fearful of accepting an amendment that requires it to be done within six months because of the possibility of unforeseen delays. I take it from that that he is going to get on with that aspect, and let us hope that that goes faster rather than slower. I beg to ask leave to withdraw the amendment. Amendment, by leave, withdrawn. Third Reading
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Rare Cancers Bill
It is a pleasure to follow the hon. Member for Brent West (Barry Gardiner). I echo his tribute to the hon. Member for Mitcham and Morden (Dame Siobhain McDonagh), who continues to be a pioneer in this campaign and is what I would describe as a no-nonsense lady. She has been in this place since 1997, and she has made and continues to make an enormous contribution. This Bill will hopefully be an exemplar for Members who are successful in the private Members’ Bills ballot. So often, those who are successful in the ballot are told, “Here’s a handout Bill—we need to fill a little niche here in a bit of legislation.” The hon. Member for Edinburgh South West (Dr Arthur) has used his good fortune in having success in the ballot to bring forward something that he wanted to do and that meant a lot to him, but he did not do it selfishly; he did it after listening to a whole lot of other people and realising that this is a subject on which there is deep-seated consensus, unrest and concern among parliamentarians. Full marks to him for doing this. I was only once successful in the private Members’ Bills ballot, and it was just after the rules were changed, so even though I came third out of the hat, I was No. 17, because it was done in reverse order so that it looked better on television. I think the previous Deputy Chairman of Ways and Means was responsible for that change. I have never had the good fortune of having a Bill that has been able to make progress; it is something I still look forward to and yearn for. This is a really important subject. When we look at the Second Reading debate, in which I was briefly able to participate by way of an intervention, we can see the strength of feeling. I go back to the Minister’s response to my amendments on Report. I hope he will be a bit more helpful on Third Reading about the role of NHS England and what will happen. I have paid tribute to him for agreeing that priority should be given to getting on with setting up these research bodies and looking into these issues. It is asking too much for the Government to agree to put those things on the face of the Bill, but I think it is clear from the pressure that is already on the Minister that his Department—however much it may have dragged its feet in the past—is now intent on rectifying that. Most important of all, we will get the Government’s cancer plan. Let us hope that it will not be on the slow burner—we are promised it before the end of the year, and I hope it will be nearer this end of the year than next year. That could be very important, and as my hon. Friend the Member for Hinckley and Bosworth (Dr Evans) said, it links in with a lot of what we have discussed today. Cancer needs to be taken more seriously in this country. We need to invest more. We need to get back to the top of the international league table, where we should be, as a leading nation with a very strong economy. I see in today’s news that the economy is shrinking, but that should not be a reason not to campaign to get these cancers shrunk.
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Secure 16 to 19 Academies Bill
I beg to move amendment 1, page 1, line 12, leave out subsection (4).
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Secure 16 to 19 Academies Bill
Some people may be unfamiliar with the detail of the Bill because it did not receive a Second Reading debate. It went through on the nod on 16 May. It then went into a quite truncated Public Bill Committee on Wednesday 2 July, and it has now come back to the Chamber on Report. I tabled amendment 1 to highlight my concern about the consultation arrangements proposed in subsection (4). Amendment 2 is a consequential amendment. As people will have noticed, in the Bill’s long title, it states: “expand a secure 16 to 19 Academy; and to alter the consultation question required when it is proposed to establish or expand a secure 16 to 19 Academy.” If amendment 1 were successful, the long title would need to be amended, and in anticipation of that, I tabled amendment 2. As ever, I am most grateful to the Public Bill Office for having ensured that I was on the right lines with that and that such an amendment could be tabled. Amendment 1 arises from the fact that section 10 of the Academies Act 2010 states that before entering into an academy arrangement, the provider “must carry out a consultation on the question of whether the arrangements should be entered into.” Clause 1(4) would insert into that provision an exception that “where the educational institution, if the arrangements are entered into, is to be a secure 16 to 19 Academy…the person is not required to carry out a consultation on that question”. In other words, it is an exemption from the requirement for a consultation on the question of whether the arrangements should be entered into. I do not see that as a reasonable thing to do. In the short debate on this matter in the Bill Committee, there was a bit of a misrepresentation when it was stated that “secure schools do not compete with other schools.”––[Official Report, Secure 16 to 19 Academies Public Bill Committee, 2 July 2025; c. 4.] That may be true, but they can compete with other institutions, particularly those providing alternative provision. Clause 1(4) adds to section 10 of the 2010 Act that for a secure 16 to 19 academy, the person is not required to carry out a consultation on that question, but “must instead carry out a consultation on the question of how they should cooperate with potential local partners in connection with the establishment and carrying on of the Academy.” Those local partners are described as “potential local partners”, meaning “persons exercising functions of a public nature”— I think the Bill has in mind organisations such as the health service, the local education authority, councillors and so on— “and…so far as not falling within paragraph (a), proprietors of educational institutions…with whom the person carrying out the consultation thinks it appropriate to cooperate.” Again, that discretion is left with the person carrying out the consultation. I do not understand why we are abandoning the much more fundamental issue of the consultation. There might be no competition between a secure 16 to 19 academy and an ordinary school, but there may well be competition between that secure academy and another such academy that is already in existence or that may be proposed. The 2022 legislation on secure academies was introduced in the previous Parliament. At the time, nobody thought there was any problem with having the same arrangements for secure 16 to 19 academies as for other academies. This short debate on amendment 1 will give the Minister an opportunity to explain why that change is necessary, how it is justified, and why there needs to be a deletion of the existing consultation arrangements rather than an addition to the existing arrangements of being subject to consultation, which is the subject of proposed new subsection (2A)(b) to section 10 of the Academies Act 2010, as in subsection (4).
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Secure 16 to 19 Academies Bill
I am so grateful to the Minister. What a breath of fresh air that a Minister has actually answered my challenge and given an explanation! In the light of those circumstances, I beg to ask leave to withdraw the amendment. Amendment, by leave, withdrawn. Third Reading
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Secure 16 to 19 Academies Bill
I now have the chance to talk about the Bill. I did not have a chance on Second Reading, because the Bill went through on the nod, and I was not on the Bill Committee. I am the loser as a result; I was not invited. The hon. Member for Cramlington and Killingworth (Emma Foody) steered it through Committee quickly, and now it has come back to the House and she does not feel the need to expand on it in any way. I will take up one particular challenge, because my hon. Friend the Member for Spelthorne (Lincoln Jopp) asked a question in Committee and the Minister said: “I thank the hon. Members who have contributed so far. On the issues just raised by the hon. Member for Spelthorne, they are for the Bill as it makes progress. Assuming that it does progress, however, I am happy to write to him with an answer to those points, as they are pertinent.”––[Official Report, Secure 16 to 19 Academies Public Bill Committee, 2 July 2025; c. 6.] I do not know whether such a letter has been sent but, if so, I have not seen the contents as I was not a Committee member. When the Minister responds in his usual helpful way, I hope that he will share his answer to my hon. Friend’s question. That is a relatively detailed point. My greater concern about the Bill comes from being a great supporter of academies and what they have done to transform education provision in our country by removing that provision from the dead hand of so many local authorities. I speak as someone who, early in my political career, succeeded in persuading Margaret Thatcher to abolish the Inner London Education Authority, which was one of the great success stories of my campaigning. The Police, Crime, Sentencing and Courts Act 2022 dealt with this issue and set out the secure 16-to-19 academies. I cannot understand whether it was an oversight that the legislation was not changed then to ensure that there was a guarantee of only two years’ funding. Under the Academies Act 2010, an academy was guaranteed seven years of funding after being set up, and if that was curtailed, there would essentially be compensation for the academy. More importantly, setting up an academy is an expensive job, as I know from the setting up of what became Parkfield school as an academy in my constituency. It transferred from a free school that started in Bournemouth and did not have premises; it was basically on the third floor of an office block. It could not get planning permission because of hostility from the local education authority, which did not relish the prospect of competition. It then found some premises in my constituency that already had an educational use, because they were the training school for NATS—the national air traffic services—in Christchurch. The cost of converting those facilities into a premises suitable for an academy was significant. It was time consuming, and critics of the academy system used the fact that so much money was being spent on this provision against the then Government. It was time consuming, and critics of the academy system used the fact that so much money was being spent on this provision against the then Government. However, it was made more secure by the fact that there was a guarantee that the academy could stay in place for seven years. I am sorry to say that, at the end of this term, the academy known as Parkfield school will no longer exist, because the academy trust that took over the running of it has decided to pull out. The original notice was given a year ago, and last year the school dealt solely with people who are waiting to complete their GCSEs. The buildings there will now revert to the Department for Education. What will happen to them, who knows? The investment is there. Maybe it will be used by the local authority for alternative education provision. Maybe it will be used as a secure 16 to 19 academy. The point is that an academy would never have been able to get started in the premises at Parkfield school had it been given only a two-year lease of life. Members of this House who were elected one year ago this month think that a five-year duration is pretty short. They cannot really get their feet under the table and invest to be fit for the future if they have a guaranteed existence of only up to five years. If we are talking about premises taking on staff, and everything that goes with that—even more so if we are talking about secured premises—I cannot understand why the minimum notice period under a funding arrangement will be reduced from seven years to two. The argument put forward is that a two-year termination period will enable the Government to prioritise value for money for the taxpayer and have more flexibility, should there be a need to terminate a funding agreement with a secure school provider. That has not been expanded upon in any of the debates that I have heard or in the explanatory notes. It is just a statement, and a mere repetition of it cannot be a substitute for a justification of it. How will lowering the termination period to two years prioritise value for money? It may well mean that short-termism prevails because the academy says that it cannot do this or that, and invest for the future, because it has only a two-year potential lifespan. In articulating the Government’s case, the hon. Member for Cramlington and Killingworth went on to say in Committee: “Reducing it to two years strikes a balance between avoiding a lengthy exit period in which Government would be committed to continue funding the secure school longer than necessary”— this is exactly the system for academies: if an academy fails, there has to be an exit period, as has happened in Parkfield school— “while ensuring that secure school providers have the certainty of funding to avoid issues with recruiting and retaining the specialist staff required to work in this environment.”––[Official Report, Secure 16 to 19 Academies Public Bill Committee, 2 July 2025; c. 4.] I would suggest that having only a two-year contract is hardly encouraging for potential members of staff. I do not think the number of people aspiring to be Members of Parliament would increase if the knowledge was that there would be an election every two years and they might find themselves retrospectively on a two-year contract. The hon. Member for Cramlington and Killingworth then went on to justify the disapplication of section 9 of the Academies Act 2010 in this Bill. That was not the subject of an amendment from me, but she said that it would “remove the requirement that the Secretary of State considers the impact of entering into a new academy funding agreement on other educational establishments in the area for secure 16 to 19 academies. Although it is important that secure schools are established as academies, in order to ensure they mirror best practice in the community, they are fundamentally different, as secure schools do not compete with other schools.” They do not compete with other schools, but they could potentially compete with other organisations. The hon. Lady then said: “As such, we do not expect them to have an impact on the viability of other local mainstream schools.” That is fine—I do not expect that—but what about schools that are not mainstream? That is used as an argument to say that this Bill would “disapply that duty for this particular type of school, to help any future secure schools open with minimal delay.”––[Official Report, Secure 16 to 19 Academies Public Bill Committee, 2 July 2025; c. 4.] I come to this Bill in a slightly suspicious state of mind, because we know that the Government are not really enthusiastic about academies. The Minister will correct me if I am wrong, but if the academy programme—I will not call it an experiment, because it has succeeded —had been in a position to have been brought forward under a Labour Government, I do not think they would ever have done it. This Labour Government are reluctant and realise that they cannot really abolish academies, but I am concerned that what is proposed in this Bill may be the starting point of facilitating the making of academies less financially viable and their withering on the vine by removing that all-important seven-year guarantee of funding or indefinite funding with a seven-year notice, which has to be given under the legislation. Those are my concerns. The fact that this Bill seems to have consensus across the House makes me even more concerned. When we look at lawmaking in this House, we see that many of the worst laws are those that were introduced with cross-party consensus. The hon. Member for Cramlington and Killingworth refers to the issue of time. There is no constraint on us being able to debate this Bill today, which is what we are doing. This is the last sitting Friday that has been allocated by the Government, but I am assured by the Government Whip who deals with these things that this Session of Parliament is likely to continue well beyond the autumn and that there will doubtless be further sitting Fridays. If there are further sitting Fridays and some of the business on the Order Paper today is not reached, we will be able to reach it on the next sitting Friday chosen. As you will know, Madam Deputy Speaker, although there is a limit of 13 days for private Members’ legislation, where a Session of Parliament has been extended significantly there has by convention been an addition of sitting Fridays to compensate for that—in the same way that additional time is provided for Opposition days by convention. Otherwise, strictly speaking, under the Standing Orders there would not be sufficient Opposition days. I am not suggesting we go on debating this Bill into the next Friday, but I hope that when the Minister responds, he does not feel that he is inhibited by time constraints imposed by the Whips, because those time constraints are artificial in the extreme and can be altered. I look forward to having my concerns addressed. I am open to being reassured, and I look forward to the Minister pursuing such a course.
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Courts (Remote Hearings) Bill
I beg to move amendment 1, page 1, line 22, leave out subsection (4). This amendment would exclude an amendment to paragraph 8(1A) of schedule 4 to the Local Government Finance Act 1992. It would reduce the Bill from covering four areas, to covering only section 47 of the Family Law Act 1996, section 9 of the Anti-social Behaviour, Crime and Policing Act 2014, and section 43 of the Policing and Crime Act 2009. Why am I concerned about removing provisions relating to local government? Well, I have been instrumental in discussing, in the House and elsewhere, the costs and burdens of council tax ever since it was introduced, consequent upon the failure of the legislation for community charges. I was privileged to help take through this House that legislation on the community charge in the late 1980s. I still meet people who think it was a big mistake to abandon the community charge, which would have ensured that everybody in receipt of local government services, if they were over 18, would have made a contribution. That is all history. It was changed. We introduced council tax, and with it council tax administration and enforcement regulations. It is those regulations that would now be altered by clause 4 of the Bill. Instead of what is already set out on the ability of the courts to deal with council tax administrative and enforcement problems, it is suggested that those court hearings should be able to be held remotely. In other words, there would not be any proper ability for people to see what was going on. In my view, the deterrent value of such hearings would be lost, because they would be remote hearings, rather than in-person hearings in the local magistrates court. Let me also mention the extent of the problem we already have with the enforcement of council tax arrears. They are now in the order of £6 billion, as the Minister will know—some £6 billion in council tax arrears. I think almost 10% of that total is attributable to just four local authorities. It will not surprise hon. Members to know that those local authorities are Liverpool, Birmingham, Manchester and Brent. Between them, those four local authorities are responsible for more than 10% of the £6 billion in council tax arrears at the moment. What are we doing? Why are we trying to reduce the pressure on council tax payment miscreants by enabling them to hide behind remote hearings instead of having to face the music in a proper court of law, where justice can not only be done but be seen to be done? Why should a council tax debtor not be required to attend a court hearing in person? The court can then make inquiries about the person and discuss means of payment. It can all be done with witnesses. The magistrates can see aspects of the demeanour of the defendant in person and take those into account. Most importantly of all, they can ensure that the court process acts as a deterrent against people thinking that paying their council tax is essentially a voluntary activity. A real debt crisis is building in this country, and not just on council tax. I serve on the Energy Security and Net Zero Committee; we have heard evidence that the arrears on energy payments are now £4 billion or more. Why are we seeking in this Bill to reduce the pressure on people who almost make paying council tax seem voluntary? Why do we not put more pressure on the local authorities responsible for a lot of the council tax arrears? I am lucky enough to live in the New Forest district council area; it is 286th in the council tax arrears league table; that amounts to about £69 per council tax payer. By contrast, in Liverpool the arrears are £194,721,000, which means that for every council tax dwelling £869 is owing. What is being done to put pressure on Liverpool city council to do something about the situation? The same applies to other councils, including in the area that I am privileged to represent. BCP council is 109th in the league table with more than £45 million of council arrears, amounting to £249 per council tax dwelling. Dorset council, in the other half of my constituency, has £53 million in council tax arrears, amounting to £290 per council tax dwelling. I have tabled the amendment to ask the Minister this: why we are proposing to facilitate remote hearings for issues relating to council tax? The council tax administration and enforcement regulations enable a council to issue a reminder notice and a final notice. If the debt remains unpaid for more than 14 days after a reminder notice is sent, the council can apply to the magistrates court for a liability order. There will then be a hearing, and if the magistrate finds that the taxpayer has failed to pay council tax, they will order the taxpayer to pay the outstanding sum as well as the council’s costs—that is set out in regulation 34. Once a liability order is granted, the council can use several different enforcement methods to collect the debt. It can instruct an employer to deduct money under an attachment of earnings order, it can make deductions from benefits, it can take control of goods, or it can issue a charging order. In extremis, the council can even initiate bankruptcy proceedings, and ultimately, it can apply to commit the taxpayer to prison if bailiffs have been unable to find goods belonging to the taxpayer that cover the debt. Given that local authorities possess all those powers under the council tax administration and enforcement regulations, why are they not being used effectively? Why do we think that creating remote hearings is going to improve matters? That seems absolutely ludicrous to me. If ever there were a good use of a magistrates court’s time, it is to ensure that conscientious payers of council tax in the area covered by that court do not have to subsidise people who do not pay their council tax, resulting in the enormous arrears to which I have referred. That is why I am concerned about this proposal. Remote hearings were introduced during the pandemic and have been used in other circumstances, but the consequence of a remote hearing is that the press and the public are in the dark. One of the best deterrents to council tax non-payment would be for people who are in receipt of liability orders in the local magistrates court to have their names and addresses published in the local paper. That is going to be made much more difficult if the Bill contains references to council tax when it becomes law, so on behalf of all those people who are suffering as a result of the more than £6 billion owed in council tax, I urge the Government not to proceed with this particular part of the Bill. That is why I have tabled my amendment.
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Courts (Remote Hearings) Bill
I thank the Minister for his response. Perhaps the logic of what he says is that, instead of my amendment to remove the provisions relating to council tax, we should add to the Bill a provision about shoplifters and fraudsters, so that they are subject to remote hearings, on the basis that this will assist in the administration of justice. I was too slow to table amendments to such an effect in order to draw out the Minister further, but it is implicit in what I have said that I do not accept the explanation he has given. Were that explanation to be correct, I urge him to add categories to the Bill when it reaches the Lords, so that justice can be done, as he would see it. I beg to ask leave to withdraw the amendment. Amendment, by leave, withdrawn. Third Reading
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Courts (Remote Hearings) Bill
Madam Deputy Speaker, it will not surprise you that, in the light of the Minister’s response to my amendment, I am very unhappy about the Bill. Unamended, it incorporates the provisions on local government non-payers that I described on Report. I cannot get my head round the argument put forward by the Minister, and it is replicated in the explanatory notes on the Bill, which say: “This Bill creates a more efficient process for handling these matters, removing the need to move people from police cells to courts and for judges/magistrates to travel to attend courts in person to hear the cases at the weekend or public holidays.” That certainly does not refer to cases involving local government debts. It may well apply to some cases relating to other aspects of the Bill. The explanatory notes also say: “The use of remote link in Criminal proceedings is relatively common and has delivered significant benefits. It is also common in Civil and Family proceedings. In those proceedings, the appearance of a defendant by remote link is permitted at the direction of the court, including cases of far greater sensitivity or gravity.” Of course, family proceedings are in camera anyway, so Joe Public of the local Daily Echo will not get access to that. I am not suggesting that they should, but if they cannot access information about who is in council tax arrears and is being brought before the court, that will become much more difficult. The explanatory notes go on to say: “The lack of legal power to order that these cases are heard by remote link means that all arrested defendants must be transported from the police station to court”. Earlier, I went through all the stages that people have to go through before they find themselves threatened with imprisonment for debt. If they go through all those stages, surely it is important that they should be brought to court, and we should not be concerned about the fact that they will have to be transported from the police station to court or that the judge may have to travel to court. Of course, all that has been made more difficult because we have closed so many magistrates courts that the travelling distances are longer.
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Courts (Remote Hearings) Bill
I see that the Minister agrees. We have so few courts now compared with before that people have to travel further, with all the inconvenience that that leads to. The explanatory notes continue: “This leads to delay in dealing with the case and is not an effective way of using resources.” I just do not think that that applies in the case of the council tax provisions. If there were a sunset clause, and we could see whether putting more pressure on councils to take action against those who do not pay council tax reduced overall arrears, then we might be getting somewhere.
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Courts (Remote Hearings) Bill
I am grateful to the hon. Gentleman for making that point, but I am not sure that I agree. In essence, the criminal justice system is there to ensure that there is a level playing field, that everybody is equal under the law and that the rule of law applies. The figures that I have given show that the rule of law is not being consistently applied across the country when it comes to the duty to pay council tax, and quite a lot of enforcement authorities seem to be rather cavalier about enforcement. I just do not think that allowing remote hearings will suddenly rectify a situation in which council tax arrears in Birmingham and three other authorities amount to well over £1 billion. Indeed, some of the areas where council tax arrears are highest are the areas where we have seen complete failures of administration, Birmingham city council being one such example. As a direct result of Birmingham city council’s failure to operate effectively, the Government had to intervene, put the council into special measures and essentially allow the council to increase council taxes far in excess of the 5% threshold that normally applies. The same is true in Croydon and Thurrock. If the hon. Member for Burnley (Oliver Ryan) looks at my list of local authorities and council tax arrears, he will see that failures to deal with council tax arrears are a very good indicator of a local authority’s failure, although I have yet to do the work on linking that proposition with the salaries that the chief executives of those local authorities pay themselves. I do not believe that those large, inflexible authorities will be motivated by the Bill to have remote hearings when they are not even prepared to use the existing structures. It may well be—this point supports the hon. Gentleman—that small councils like New Forest district council are quick on those who do not pay their council tax or do not pay it promptly. The possibility of having remote hearings instead of those councils having to issue court summonses might save administrative costs and save the burden. However, in my submission, that potential small benefit is more than outweighed by the problems I have been describing. It would have been so easy for the Government to put forward this Bill on the basis that it would not apply to council tax. Having said that, section 47(7)(a) of the Family Law Act 1996 requires that a person in breach of an occupation order, where that order contains a power of arrest, must be brought before a court within 24 hours of the arrest. That is why the argument is made that courts have to be available over the weekend and so on. As is so often the case when we are faced with legislation like this, it would perhaps be sensible to change that provision, so that the person does not need to be brought before a court within 24 hours of arrest if that period includes a Saturday or Sunday. That would be a much more direct way of dealing with this issue, in my submission. Again, it is an easy cop-out for the Government to say that because the person has to be brought before a court within 24 hours, we have to go for remote hearings. If we did away with the need to bring the person in within 24 hours if it was the weekend, we would not need this Bill. Section 47(10) of the Family Law Act states that the court can remand a person in breach of a non-molestation order who has been brought before a court pursuant to a warrant for arrest, and the matter is not disposed of forthwith. That is another example of where this situation applies. Section 9 of the Anti-social Behaviour, Crime and Policing Act 2014 requires that a person arrested following a breach of an antisocial behaviour injunction, where that injunction contains a power of arrest, must be brought before a court within 24 hours of arrest. Why are we not amending section 9 of that Act to ensure that in the circumstances that the arrest takes place over a weekend, the 24 hour timeframe does not apply? Similarly, section 43 of the Policing and Crime Act 2009 requires that a person arrested following a breach of a gang-related violence or drug-dealing injunction must be brought before a court within 24 hours of arrest. Again, that could easily be amended to avoid the need for these remote hearings, which is what we are concentrating on in this Bill. I am a lawyer by background, as you know, Madam Deputy Speaker. When I was at university doing my law degree—or my jurisprudence degree, to be precise—I can remember our law class going to the local assizes when a rape trial was taking place. As one might imagine, there was a lot of interest from these embryo lawyers in what was happening. In that rape trial—I remember it to this day—the defending counsel got up and asked, essentially, that the House do sit in private. The High Court judge put his feet up on the bench in front of him and said—really, he was speaking to the law students, who he knew were in the gallery—that, “Justice must not only be done, but must be seen to be done.” That was a message that I learned very early on as a law student, and I still think it applies. Remote hearings could be justified during the covid crisis—fine—but now they are being used as an excuse. We already have some examples of where they are permitted, but the Bill goes too far in extending that. The hon. Member for Burnley, who introduced the Bill, may feel it is rather sad that it is being picked at by Members of the House—
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Courts (Remote Hearings) Bill
Well, I do not know; I am sure that I speak for many.
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Courts (Remote Hearings) Bill
The hon. Gentleman has a disarming smile and approach—dare I say, it is almost seductive? May I put to him an alternative proposition? He is in a position to influence the Government Whips to ensure that extra sitting Fridays are provided. Because his Bill is on its Third Reading, assuming that its Third Reading is not completed today, it would take priority over other Bills when additional sitting Fridays are put on. The fact is that we have not yet even had an announcement about the sitting days for next year. A year ago, after the general election, the Leader of the House gave us the sitting days for the whole period through to the end of this July, and I congratulated her on that at the time. She has not done that in relation to next year, but I understand it is likely that this first Session will go on, perhaps even beyond Christmas. In the meantime, we could have another sitting Friday where the hon. Gentleman’s Bill could be dealt with on Third Reading. The question now arises as to whether I should reflect on the points that the hon. Gentleman made in his intervention or just rely on the Minister and my hon. Friend the Member for Bexhill and Battle (Dr Mullan) on the Opposition Front Bench to put in their three-pennyworth. I recognise that unfortunately we are always time-limited and regret that so many of the Report stage Fridays were taken up with one Bill. We are dealing with the consequences of that today. We are now debating the fourth Bill of the day on Report, which, if one looks at the records, is a pretty good strike rate for a Report stage Friday. We are now in the middle of debating this important Bill, which would affect lots of people. I do not see any reason at all why this important debate should not be able to continue on the next sitting Friday. One has very little power in this place as a Back Bencher, but one thing one does have is power over the time. We want to come on to another important Bill about controlled drugs. I am sure the powers that be will know that if we are to get on and discuss the hon. Member for Burnley’s Bill and the Controlled Drugs (Procedure for Specification) Bill, we will need an additional sitting Friday. At the same time, we would then be able to deal with the Bill on homelessness by the chairman of the 1922 committee, my hon. Friend the Member for Harrow East (Bob Blackman), which went through unopposed at Second Reading, but has been blocked by the Government ever since. That is intolerable—
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Business without Debate
I beg to move amendment 1.
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Unauthorised Entry to Football Matches Bill
Order. If Members hope to contribute, they need to bob throughout. I cannot read their minds, if they only bob towards the end.
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Unauthorised Entry to Football Matches Bill
Order. A discussion should not be taking place while colleagues are seated.
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Rare Cancers Bill
With this it will be convenient to discuss the following: Amendment 2, page 1, line 6, at end insert “and (c) set out a timetable for implementing any changes in the law recommended by the review.” Amendment 3, page 1, line 7, leave out “in particular”. Amendment 4, page 1, line 9, leave out “three” and insert “two”. Amendment 5, page 2, line 3, leave out “in the opinion of the Secretary of State”. Amendment 6, in clause 2, page 2, line 7, leave out from “are” to end of line 8 and insert “arrangements in place to”. Amendment 7, page 2, line 12, after “appointed” insert “within the period of 6 months beginning with the day on which this Act is passed”. Amendment 8, in clause 3, page 2, line 33, leave out “in the opinion of NHS England”. Amendment 9, page 2, line 40, leave out subsection (4).
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Rare Cancers Bill
I call the shadow Minister.
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Rare Cancers Bill
Sir Christopher, is it your pleasure that amendment 1 be withdrawn?
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Rare Cancers Bill
Very briefly. I was asking whether amendment 1 would be pushed to a vote or withdrawn, so if you could alert me to that it would be very useful.
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Unauthorised Entry to Football Matches Bill
I thank the hon. Member for Amber Valley (Linsey Farnsworth) for bringing the Bill forward and my hon. Friend the Member for Christchurch (Sir Christopher Chope) for his amendments. At this stage, is it correct that you wish us to speak only to the amendment, Mr Speaker? [Interruption.] Yes. We the Opposition have nothing further to add to the debate that we have had this morning.
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Unauthorised Entry to Football Matches Bill
I thank the hon. Member for Amber Valley (Linsey Farnsworth) for bringing the Bill forward. For many in this Chamber, the Euro 2020 final was a rollercoaster of ecstasy and disappointment, though I appreciate that certain Members from other parts of our United Kingdom may have felt a little less devastated at the result. Beyond heartbreak on the pitch, the Euro 2020 final was a day that nearly ended in catastrophe. Thousands of ticketless fans forced their way into Wembley, creating chaotic and dangerous scenes. When disaster is so narrowly avoided, it is reasonable to ask whether anybody made a mistake. Sadly, this was not a one-off incident. Tailgating was reported again at both the 2024 champions league final and the 2025 league cup final. Of the 91 arrests made on that day, 68 were related to fraud—people trying to get in without a ticket. We heard from the hon. Member for Cumbernauld and Kirkintilloch (Katrina Murray) about a particularly upsetting and fatal day. These incidents put genuine fans at risk and erode the trust that is necessary to police events of this scale properly. For many people in this country, a trip to the football is the highlight of their year. For many families, it is a hard-earned outing or rare treat for their children—something they scrimp and save for. What must they think when they see hooligans jump the barriers and get in for free? They must think that they are the mugs for having paid and followed the rules in the first place. It is therefore right that we give police and organisers the tools they need, not just to remove people in the moment but to prevent repeat offences through banning orders. That builds on steps taken by the previous Government that saw drug-related offences in football stadiums likewise result in stadium bans. I welcome the clear focus on intent. The defences included in the Bill are thorough. I hope that the Minister can confirm that enforcement will be directed firmly at dangerous deliberate entry, and will not affect fans who responsibly pass on spare tickets. Targeted, common-sense enforcement is exactly the right approach to tackling this kind of disorder. Where new powers are necessary, the Opposition will support their introduction. The FA certainly seems to support the introduction of a bespoke offence for tailgating. However, all too often, we do not make enough use of existing powers. If I understood the sentiment expressed by my hon. Friend the Member for Christchurch (Sir Christopher Chope), who is no longer in his place, he was saying that the laws introduced in this place are often improperly enforced. Following the 68 arrests that I mentioned earlier, not a single person has been charged. A bespoke tailgating offence will make little difference unless police and the Crown Prosecution Service are willing and able to secure convictions. We must support them in doing so, as well as in taking other steps, such as co-operating with stadiums to advise on cases in which stadium bans might be appropriate. More broadly, many of us are concerned by the rapid erosion of the social contract. Across our society, we are witnessing a troubling disregard for not only law and order, but standards of behaviour. Whether it is people pushing through ticket barriers on the tube, as my hon. Friend the Member for Christchurch mentioned and my right hon. Friend the Member for Newark (Robert Jenrick) has highlighted, or migrants working illegally as delivery drivers, as my right hon. Friend the Member for Croydon South (Chris Philp) has highlighted, the principle is the same: laws apply to everyone, or they apply only to those of us who are good enough stick to them, which is deeply unfair. If we do not take action to uphold those standards, particularly when safety is at stake, public confidence inevitably suffers. The starting point must always be the enforcement of our existing laws, and we must give full support to institutions such as the FA as they take steps to improve safety and uphold standards. In the light of all that, I am pleased to reiterate the support expressed in Committee and confirm our continued support for this private Member’s Bill. I again thank the hon. Member for Amber Valley for introducing it.
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Colne Valley Regional Park: Protection
It is an honour to be here on one of the warmest Fridays of the year to enjoy and extend our time in the House for the final Adjournment debate of the week. I am delighted to discuss the Colne Valley regional park, which straddles London, Slough, Buckinghamshire, Windsor and Maidenhead —so many different constituencies. Its importance for infrastructure and as a strategic geographical location is second to none, which is why I secured this debate. The beautiful south Bucks villages of Denham, Fulmer, Richings Park, Iver Heath and the Ivers are all part of the Colne Valley regional park. Its national significance is mainly due to its geographical location: it is in proximity to Heathrow; High Speed 2 goes right through it; and we have all the motorways. It provides the lungs of London, and the vital break of green belt between London and the counties outside it. We get zero benefit from the ultra low emission zone—the Mayor’s restrictions on how we can go in and out of London—or from Transport for London. All we have is a bit of green space that gives us a buffer between London and Buckinghamshire. That is true for all the counties that straddle London along west London and the M25. Our issue is that that little bit of green belt—some of which, Madam Deputy Speaker, is as small a divide as the area between the two sides of the House—which is our last remaining bit of green belt, and which separates us from London, is under attack. It is under attack from overdevelopment, the expansion of Heathrow, HS2 and motorway expansion.
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Colne Valley Regional Park: Protection
I thank my hon. Friend, who has long been a champion of the Colne Valley regional park and the green belt in that area. It will impact us in such a negative way. I have fought to stop the third runway at Heathrow and to champion and protect our green belt. The problem is we have very little green belt there, and the expansion would increase the impact on that green belt, both with cars coming into Heathrow and planes taking off. The amount of green belt that would be consumed would be devastating to my area, as I am sure it would be to my hon. Friend’s. This is a time for the Government to do something incredible. They can preserve the green space of the Colne Valley regional park, which provides the vital lungs for London, while allowing their infrastructure to flourish around it. It is important that this green-belt land is preserved. That is what must happen now. There is no protection of this because it is an area whose ownership has passed between London, Buckinghamshire and Slough over the years. There are parts of it that have been owned by London councils and then by Buckinghamshire council, and vice versa. It has been going on for quite some time. Right now, there is no additional protection. It is not common land or an area of outstanding natural beauty; it is simply land that is green and that provides vital green corridors for wildlife and farmers and for wildlife conservation across the west London and Buckinghamshire areas. All that is under threat from overdevelopment. Today, I want to focus on the wonderful landscape and countryside diversity that is at risk. In the words of the Colne Valley regional park itself, our countryside is in crisis. The team at the park have set out a call for action, and in this debate I want to set out my unwavering support for that call. I am grateful for all the community support for the Colne Valley regional park I have seen across Denham, Iver, Iver Heath, Richings Park and all the south Bucks villages. Given its proximity to London, it is one of the most pressurised green-belt areas. It is the very epitome of the lungs of London, but it also epitomises why we must take action now. An avalanche of developments are being proposed across the park, which would divide it and cause the closing of the wildlife corridors. They would cause detrimental impacts for wildlife and for those who use and access the park. All that is happening while the park sits between two of Europe’s biggest infrastructure projects: HS2 and the expansion of Heathrow. All that development is happening while the Colne Valley regional park lacks any of the protections of an AONB. This is a cross-party issue, because the park crosses into London, Buckinghamshire, Windsor and Slough, and into Labour, Lib Dem and Conservative constituencies. It touches many political parties, because it impacts so many constituencies across the west London area. The hon. Member for Slough (Mr Dhesi) could not be here, but he wanted to show his support for the Colne Valley regional park, as did my hon. Friend the Member for Windsor (Jack Rankin), who is rightly in his place to support it today, and my hon. Friend the Member for Ruislip, Northwood and Pinner (David Simmonds), who has long been a champion for this area. Many other MPs would have liked to be here today; they told me to pass on to the Minister that this issue matters across the parties. It is not a political issue, but it is an issue that many Members from across this House care about deeply. Without a plan, the development will happen around the park, and vital green corridors will be lost forever. The Colne Valley regional park has set out a five-point plan to influence local planning, restore the landscape, reform national planning, establish its status and protect nature. I will focus on two areas that explicitly matter to this House and the Government, and will touch briefly on funding. Since arriving in Parliament, I have been advocating for stronger protections for the Colne Valley regional park. There is a real and urgent need to look at extending the Chilterns AONB to include the park. If there is not an extension of the Chilterns AONB, a specific designation for the park itself needs to be progressed. Will the Minister work with me to explore that opportunity urgently? The Colne Valley regional park also represents an opportunity to show how we can plan for green spaces around the edges of cities. Any big infrastructure project will require the input of green space. Please will the Minister make sure that the green space that is required for any such infrastructure expansion is put into the Colne Valley regional park, so that we can work in tandem to provide what the residents and wildlife need, while the Government are still able to put in their infrastructure projects where they choose? At the moment, our approach to national planning does not address the strategic risks, opportunities and problems that face the Colne Valley regional park. We have a unique opportunity to address that. The Colne Valley regional park spans many local authorities, yet is of national importance for the reasons set out. We have to think beyond boundaries and integrate areas such as the park, which lack national park status or AONB protection, into our national strategic planning. Will the Minister explore using the Colne Valley regional park as a case study and test case to explore just how we might do that? We have an opportunity to plan strategically for our countryside in our national planning policy. For major developments around the Colne Valley regional park, and areas like it, the park should be an integral part of the planning process, not treated as something for side consideration. We can plan how green corridors for people and wildlife can sit alongside the major developments of infrastructure and housing that are planned around the London area. Will the Minister consider how the national planning framework can be developed urgently for just that purpose? Finally, I will touch briefly on funding. The Colne Valley regional park relies on local authorities, grants and the generosity of corporate donors to fund its operational costs. I hope that I have set out clearly how effectively those resources are used for the good of our landscape, biodiversity and communities, but given the strategic development challenges that the park faces to its very existence, it needs funding support to enable a plan and to develop a response. Will the Minister consider ways in which bodies such as the Colne Valley regional park can be better supported financially in the context of a dramatically changing planning landscape? Will the Minister speak to the Mayor of London to see whether some of the ULEZ contributions being made by drivers could be used for the park’s upkeep and protection? The park is very much impacted by infrastructure projects that are happening in London but receives no funding from London, so will the Minister speak to the mayor about some of those resources being reallocated to the park? There are many more points that time has not allowed me to cover, so will the Minister agree to meet me, the hon. Member for Slough, my hon. Friend the Member for Windsor and others from across the House to discuss the issue of Colne Valley regional park in depth? The Colne Valley regional park matters to me and my constituents. It has importance nationally, for our wildlife and as a case study for how green spaces can exist alongside our major cities. It means something that matters to us all. It is time now to listen and act before it is too late.
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Colne Valley Regional Park: Protection
The proposals for a third runway at Heathrow would take 900 acres of the regional park directly, not to mention the indirect consequences, including Colnbrook and Horton in my constituency, which would be irreparable. Does my hon. Friend condemn the Chancellor pressing the panic button and inflicting this irreversible damage on the Colne Valley park?
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Rare Cancers Bill
To your delight, I am sure, Madam Deputy Speaker, and to the delight of the whole House—especially that of the Government Whips—I am not going to speak for very long on Report, although I am not promising not to speak for some time on Third Reading. I wish to briefly speak to amendments 5 and 8 tabled by my hon. Friend the Member for Christchurch (Sir Christopher Chope). Before that, though, I congratulate the hon. Member for Edinburgh South West (Dr Arthur) on the Bill. I am generally supportive of it and think it is entirely necessary. Turning to the amendments, my hon. Friend the Member for Christchurch is right. It does concern me that the words “the opinion of the Secretary of State” are included proposed new subsection (2) of section 1E of the National Health Service Act 2006. As my hon. Friend has pointed out, proposed new subsection (4) of section 1E and proposed new subsection (5A) of section 261 of the Health and Social Care Act 2012 set out the definition of a rare cancer, and if the Bill passes, that definition will become law. I therefore think there is a contradiction within this piece of legislation: it contains an absolute definition of a rare cancer, but adds some ambiguity by referring to the “opinion” of the Secretary of State. I ask the Minister to explain how both those things can be true. If the Secretary of State decides that there is some other definition of a rare cancer, how can that possibly be in line with the definition that is written into the law? As the hon. Member for Edinburgh South West has said, the definition that has been included in the Bill—that a rare cancer is “a cancer that affects not more than 1 in 2000 people in the United Kingdom”— aligns it with the UK rare diseases framework, which was published by Lord Bethell in the other place in 2021. It seems to me that that is an effective and suitable definition, so again, I ask the Minister whether he expects there to be some other definition. If he does not expect that, why is it necessary to include the words “the opinion of the Secretary of State”? The Bill is not even consistent. Proposed new subsection (2) of section 1E of the National Health Service Act 2006 refers to the opinion of the Secretary of State, but proposed new subsection (5A) of section 261 of the Health and Social Care Act 2012 talks about “the opinion of NHS England”. As my hon. Friend the Member for Christchurch has pointed out, NHS England is fortunately going to be abolished very soon. When that happens, will we have to pass either primary legislation or secondary legislation to delete those words from the Bill? Would it not be better if we deleted the words “the opinion of NHS England” now? Why will the Minister not consider removing them? If there is some reason why he thinks the Secretary of State might have to change the definition, why are those two clauses of the Bill not consistent? I hope hon. Members will see that what the hon. Member for Christchurch and I are trying to achieve—certainly through amendments 5 and 8—is to establish a clear definition of a rare cancer. We are aiming to ensure that there is no ambiguity in that definition, and if there is to be ambiguity, we want to at least ensure that the body or authority that is going to make any changes is consistent in the legislation.
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Rare Cancers Bill
Once again, I congratulate the hon. Member for Edinburgh South West (Dr Arthur) on bringing this essential Bill before us and thank him for the hard work he has done to make sure we get to this place. As I have said many times in this House, early detection saves lives, but without meaningful progress in research we will fall behind other countries making major advances in cancer care. We call these rare cancers, and they are rare in their individual components, but I have been amazed by how many constituents across Farnham, Bordon, Haslemere, Liphook and the surrounding villages have contacted me in support of the Bill and to share their experiences. Despite rare and less common cancers receiving more than half of UK cancer research funding in recent years, a staggering 82% of patients surveyed by Cancer52 said that they were never offered the chance to participate in a clinical trial. That is not because there is no public support or because the science is not there, but because persistent structural barriers are in the way. The Bill addresses those barriers directly. If enacted, the Rare Cancers Bill will appoint a national specialty lead for rare cancers within Government, creating accountability, facilitating research and collaboration, and embedding co-ordination across NHS England—while it still exists—the National Institute for Health and Care Research and cancer alliances. Secondly, it will mandate a review of the UK’s orphan drug regulations, aligning incentives such as marketing exclusivity and reduced regulatory fees with international best practice. Thirdly, it will adapt the NIHR’s Be Part of Research platform to create a dedicated, proactive registry that directly links patients with relevant clinical trials. Let us be clear: this Bill aims to deploy smarter systems, harness the power of artificial intelligence, expand fair access to treatment, end the postcode lottery and ensure that every patient, no matter the type of cancer, has the opportunity to benefit from research and high-quality personalised care. Let us also be clear about the need. Rare and less common cancers account for 47% of all UK cancer diagnoses, yet they are responsible for 55% of all cancer deaths. That means that more than half of those who die of cancer in this country do so from conditions that receive disproportionately less investment, less attention and less hope. The disparity in survival is stark. For some rare cancers, five-year survival rates languish in the single digits. Only 16% of people diagnosed with cancers of the pancreas, brain, oesophagus, liver or stomach survive beyond five years. By contrast, the five-year survival rate across more common cancers is more than 55%. This is not a marginal issue; this is mainstream cancer care, but it is neglected. Our international peers are taking action. In countries such as France, Germany and the USA, regulatory frameworks are actively incentivising clinical trials for rare cancers. The UK, meanwhile, has fallen from second to 10th in Europe for access to orphan medicines. We must reverse that decline. We must unlock the potential of our research base, and this Bill gives us the legislative structure to do so. The NHS 10-year plan, launched with the ambition to modernise our health service, is a wide-ranging document. It rightly champions early diagnosis, innovation and personalised care, and there is no doubt that many of its pillars, particularly those on genomics, digital access and therapeutic innovation, can benefit people with rare cancers, but “can” is not the same as “will”, and “should” is not the same as “must”. The plan sets out a national goal to diagnose 75% of all cancers at stages 1 or 2 by 2028. That target explicitly includes rare and less common cancers. That is an important and necessary ambition but, as campaigners have rightly pointed out, without specific structural action on rare cancers, we will not hit that target; even worse, we will leave some of the most vulnerable patients behind. As I have said, these are not fringe diseases: these are mainstream conditions that are under-researched and under-resourced. The 10-year plan includes a number of relevant commitments, such as the whole genome sequencing of newborns, supported by £650 million of investment, which could revolutionise early detection of genetic cancer syndromes. Of course, there are some safeguarding issues around that sequencing—I do not want to pre-empt my column in PoliticsHome on Monday, but please read it for more about my concerns over those safeguards. Likewise, the plan includes the expansion of genomic and pharmacogenomic services in the NHS, giving us the potential to offer targeted therapies for rare cancers. It has a pipeline for advanced therapy medicinal products, including CAR T-cell treatments, which are already being rolled out for certain rare blood cancers. It also streamlines the regulatory pathways through a proposed innovator passport to bring treatments to patients faster. Those are steps in the right direction, but let me be frank: the plan does not go far enough for people with rare cancers. There is no dedicated rare cancer taskforce, despite repeated calls from Cancer52, Sarcoma UK and the Brain Tumour Charity. There is no specific ringfenced funding for rare cancer services, despite the complex multidisciplinary care that these conditions require. There are no rare cancer-specific training pathways or fellowships, despite clear evidence from clinicians that a lack of expertise is hampering outcomes. The England rare diseases action plan, published alongside the NHS strategy, takes some welcome steps on collaborative networks and data integration, but rare cancers are again folded into a general framework, rather than given the targeted attention they so desperately need.
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Rare Cancers Bill
I thank the hon. Member for her intervention. She is absolutely right—I hope this matter has cross-party support in the House. As she points out, a significant number of charities across the country hope that the Bill will pass today, as do I. That brings me nicely on to what Jane Lyons, the former chief executive of Cancer52, has said: “Rare and less common cancers make up a massive part of the cancer burden in this country. They need proper structural attention—not just well-meaning inclusion in generic plans.” She is right. We need dedicated leadership and a single accountable individual or office for rare cancer research and care. We need smarter data platforms, such as the adapted Be Part of Research system proposed in the Bill, and we need a clear strategy for delivering orphan drug access, so that the UK becomes a destination for innovation, not a detour. When the NHS 10-year plan speaks of transformation, we must ensure that that transformation is inclusive. When we talk about prevention, early detection and innovation, we must be honest about who gets access and who does not. If we are serious about improving outcomes for all cancer patients, rare cancers must not be treated as an afterthought. They must be recognised for what they are: a major public health challenge hiding in plain sight. The 10-year plan gives us the tools, but it is now up to this House and to Ministers to ensure that those tools are used equitably, strategically and with urgency. That is why I was incredibly saddened to hear that Dr Susan Michaelis, the founder of the lobular moonshot project, died a couple of days ago. Susan’s life and legacy exemplify why this Bill matters. Lobular breast cancer affects 22 women every single day in the UK and more than 1,000 globally. It is not rare in the strict legal sense—more than six per 100,000 are diagnosed annually—but due to the severe lack of research, awareness and tailored treatment, it deserves to be treated as such by our systems. Susan was due to meet the Secretary of State on 14 July—this coming Monday—to discuss how to accelerate the vital five-year research project she helped to initiate. Thankfully, that meeting will still go ahead. The campaign will not stop. The lobular moonshot project will continue—for Susan, and for every woman still facing this disease without the research-backed options that she deserved. Susan is far from alone. A constituent recently wrote to me about their mother, who died in 2011, just three years after her diagnosis with glioblastoma multiforme, an aggressive and incurable brain tumour. The average glioblastoma survival time is 12 to 18 months; only 25% of patients survive more than a year, and just 5% live beyond five. Another campaigner spoke movingly about the delays she faced before being diagnosed with a rare kidney cancer—initially misdiagnosed, postponed by covid, and ultimately caught too late. There are so many rare cancers, and the stories repeat. Rare cancers are not rare to those living with them; they are rare only to the system. According to Jane Lyons, the former CEO of Cancer52, “Something like 47% of all cancer diagnoses are for rare and less common cancers, but they account for 55% of all cancer deaths…That’s a massive number of challenges—and a huge opportunity for impact.” Sarcoma UK’s recent report found that one in three sarcoma patients waits more than six months to be diagnosed. Referral pathways are frequently misapplied, and this delay is not a minor inconvenience; in cancer care, it can be fatal. The Brain Tumour Charity has called the Bill “essential for any real hope of progress in finding a cure.” The Less Survivable Cancers Taskforce has declared that this legislation is “crucial for early diagnosis and equity of access.” The Urostomy Association, in its rare cancers manifesto, calls for urgent structural change to improve data, screening and outcomes, and Lynch Syndrome UK has spoken powerfully about the opportunities to accelerate genetic-led, AI-informed cancer prevention if rare cancer research is properly funded. I believe that the Rare Cancers Bill will help to achieve that. It has three core provisions: first, a named lead for rare cancer research so that this agenda has a home in Government and a voice at the top table; secondly, a review of the orphan drug regulations to create better commercial incentives for new treatments and trials; and thirdly, a patient-focused data system built into the Be Part of Research platform so that people are no longer left in the dark about trials that could change their lives. This is not just about saving lives; it is about improving them. It is about ensuring that families are not left with grief and regret when better systems might have given them hope. Today, as we consider the Rare Cancers Bill, let us remember people like Susan Michaelis and the countless families who have campaigned for change they may not live to see. Let us recognise that rare cancers are not someone else’s problem, but a public health injustice hiding in plain sight. Let us pass the Bill—not just for the scientists and clinicians, but for every patient, and for every parent and partner who has watched a loved one suffer from a cancer few people can even pronounce. This is our chance to correct the imbalance, drive innovation and deliver real, lasting change. If we seize this moment, we can ensure that every patient—no matter how rare their cancer—can access trials, treatment and the possibility of life. Let us not waste this opportunity. Let us be clear-eyed about the gaps and build an NHS that genuinely serves every patient, with every type of cancer, in every part of this country. Together, let us leave a legacy worthy of those we have lost, and transform care for those still fighting.
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Rare Cancers Bill
I rise to speak on behalf of His Majesty’s official Opposition in support of the Rare Cancers Bill, and to welcome its thoughtful and necessary intervention on behalf of a group of patients who have been under-researched, under-represented, and under-acknowledged for too long. I commend the hon. Member for Edinburgh South West (Dr Arthur) on bringing this Bill forward, and on his ongoing dedication to the issue. The case for the Bill is clear: rare cancers—defined, in line with the UK rare diseases framework, as conditions affecting fewer than one in 2,000 people—are individually uncommon but collectively account for more than 20% of all cancer diagnoses. However, as we know, patients with rare cancers routinely face delayed diagnosis, limited treatment options and far fewer opportunities to participate in clinical research. The Bill does not claim to be a silver bullet, but it does mark a significant step forward in how we think about and legislate for research, regulation and data access in rare cancer care. It is focused, proportionate and strategically aligned with the existing NHS and National Institute for Health and Care Research frameworks. Clause 1 places a duty on the Secretary of State to carry out a review of the law relating to marketing authorisations for orphan medicinal products that are for the diagnosis, prevention or treatment of cancer. It also rightly requires that the review includes comparisons with regulatory approaches in other countries. This is vital. The explanatory notes rightly observe that research into rare cancers is often commercially unattractive because of small patient populations and high developmental costs. If our regulatory environment creates further barriers to entry, patients suffer—not because the science does not exist but because the system does not support it. The UK’s current approach to orphan designation lacks the pre-authorisation incentives found in systems such as the European Medicines Agency and the US Food and Drug Administration. The review required under the Bill is the opportunity to ask whether we are doing enough to attract the research and development that rare cancer patients deserve.
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Rare Cancers Bill
If my hon. Friend bears with me, I will turn directly to his amendments. It is important to first set out the context, because we must understand the clauses if we are to debate the amendments to them. Clause 2 makes crucial changes to the Secretary of State’s duty under the National Health Service Act 2006 by stating explicitly that it must include research into cancers that, in the opinion of the Secretary of State, are rare. Although this matters, the research agenda is often driven by numbers and funding scales. By mandating that rare cancers be part of the agenda, the Bill begins to shift the culture towards inclusion, equity and long-term thinking. I particularly welcome the creation of the national specialty lead for rare cancers, modelling the NIHR’s existing structure of research delivery leaders. This individual will be tasked with promoting and facilitating research, advising on trial design and convening collaboration. The success of this role will depend on it not just being symbolically supported but having a clear remit, adequate funding and a strategic alignment with the wider NIHR research delivery network. Clause 3 amends section 261 of the Health and Social Care Act 2012 to allow NHS England to disclose information from cancer registries for the purpose of identifying and contacting potential clinical trial participants. This is a significant and necessary step. The Bill distinguishes between a disease registry, like the National Disease Registration Service, and a contact registry, such as Be Part of Research. Making sure that these systems can speak to each other will be of significant benefit when it comes to matching patients with opportunities. Importantly, the clause reaffirms that any such data sharing must remain compliant with the Data Protection Act 2018. As proposed new subsection 6A to the 2012 Act makes clear, “A power conferred by this section to process information does not authorise the processing of information which would contravene the data protection legislation”. This is a safeguard that we must preserve, not weaken, if we are to maintain public trust in the system. At this point I turn to the amendments tabled by my hon. Friend the Member for Christchurch (Sir Christopher Chope). He approaches private Members’ Bills in the way that a jeweller examines diamonds—with a magnifying glass, a steady hand and absolutely no tolerance for flaws. We may grumble as the clock ticks on, but deep down we all sleep better knowing that he is reading the footnotes. This Bill is no different; he has approached it with rigour, and I thank him for his commitment to precision and improving clarity and accountability. As he pointed out, the Bill is not trivial. Therefore, it is not only right, but indeed the duty of this House, to scrutinise closely legislation and amendments laid before us. To that end, several of the amendments aim to tighten the Bill’s drafting or introduce firmer deadlines. For example, amendment 4 would reduce the timeframe for the review under clause 1 from three years to two. Amendment 2 would require the Secretary of State to “set out a timetable for implementing any changes in the law recommended by the review.” I understand the concern that reviews can drift, but the three-year period reflects the complexity of the subject: a UK-wide review of the Human Medicines Regulations 2012, including benchmarking against other jurisdictions and engaging multiple agencies. Compressing the timeline might jeopardise the depth or quality of the analysis. Likewise, a statutory timetable for implementation could constrain the Government prematurely, before the review’s conclusions are even known.
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Rare Cancers Bill
My hon. Friend knows, far better than I, not to look at legislation in isolation. The Government will at some point bring forward the cancer plan, which will have a direct crossover with the Bill, so it is right to give the Government the freedom and space to implement the legislation. If we rush it, we could get it wrong, which would be even more detrimental for those who suffer with rare cancers. Other amendments address definitions and discretion. For example, amendment 5 would remove “in the opinion of the Secretary of State” from the definition of rare cancer, and amendment 8 would remove similar wording in relation to NHS England’s discretion. At first glance, the amendments may seem like matters of tidy drafting, but retaining discretion is important, especially as regards rare cancers. Prevalence data can be uncertain or lagging, and flexibility allows for expert judgments about edge cases in which rigid definitions may unintentionally exclude patients from trials or research that could benefit them. On top of that, there are concerns even about simple definitions. We are still exploring the difference between, for example, pre-cancerous and cancerous cells. If someone goes for a smear, that is what they are told. This is a new area. Who knows what will come up in the future? Simply defining rare cancers on the basis of lagging prevalence data is a risk, and it is therefore right that the Government and the Secretary at State have discretion to direct in one way or another. However, I would grateful if the Government would answer the question, which has been rightly posed, of who or what will fill the role when NHS England is abolished. It is not clear exactly what that will look like. I have asked the Minister this question several times, in relation to the Mental Health Bill and other areas, and it is a question that this House should rightly ask. Who will be responsible for what, when and why? That said, amendment 7, which would ensure that the proposed national specialty lead is appointed within six months of Royal Assent, deserves serious consideration. Patients have waited long enough. If the Government are confident that the post can be established promptly and resourced effectively, I would welcome that ambition being stated at the Dispatch Box today. Finally, I must express my concern about amendment 9, which proposes to remove the data protection safeguard in clause 3(4). Although the provision may be declaratory, in that it reaffirms existing legal obligations, it none the less offers clarity and reassurance. In an area as sensitive as health data, such clarity matters, and the subsection’s removal could cause unnecessary concern, even if the underlying law remains unchanged. In conclusion, this Bill is not about grandstanding. It is modest in financial cost, careful in its drafting and realistic in its scope, but its impact could be significant. For patients living with rare cancers, and clinicians and researchers striving to support them, the Bill offers real hope—hope for faster access to innovation, hope for more inclusive research and hope for a regulatory system that works for the many, not just the minority. Every patient matters, whether they are one in two or one in 2,000. As we stated on Second Reading and in Committee, we support the Bill, and I thank the House for giving me the chance to explain why.
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Rare Cancers Bill
I again thank the hon. Member for Edinburgh South West (Dr Arthur) for his tireless work on this important Bill. It has united the House, and rightfully so, because it speaks to something fundamental: the need for people with rare cancers to be seen, heard and addressed. The Opposition have supported the Bill from the outset, and as the shadow Secretary of State, my right hon. Friend the Member for Melton and Syston (Edward Argar), and my hon. Friend the Member for Sleaford and North Hykeham (Dr Johnson) have said, we will continue to do so today. We would like to thank the charities and campaigners who have worked tirelessly to bring this issue forward: Pancreatic Cancer UK, the Brain Tumour Charity, Cancer52 and many more. Their work has helped to put rare cancers firmly on the agenda, and this Bill is part of their legacy. I have been on the other side of this, delivering the news, particularly when I worked on an upper gastrointestinal hospital ward as a junior doctor. Delivering the news that someone has pancreatic cancer is one of the toughest things I have ever had to do, and it is worse still for the relatives who have to receive that news. I long for a day when no doctor has to deliver a death sentence to a patient, and this Bill brings that a step closer. My hon. Friend the Member for Sleaford and North Hykeham spoke in Committee about the repurposing of drugs, and I want to highlight its importance. Treatments that were developed for other conditions may be lifesaving for people with rare cancers. It is vital that the Bill’s scope allows for innovation to thrive. Conservative Members urge the Government to embed the provisions of the Bill in the forthcoming national cancer plan. I hope the Minister will confirm that that will happen, and hopefully he will tell us when it will be published. Finally, as the expert jeweller, my hon. Friend the Member for Christchurch (Sir Christopher Chope) said on Report—his keen eye for a flaw is important—there is the glaring problem of the pending abolition of NHS England, which poses practical questions about data sharing and, of course, oversight. Conservative Members will do all we can to ensure that the legislation remains workable under the new structures, and I hope the Government will do that too. The Bill will not solve everything overnight, but it is a serious step forward and a statement that even the rarest conditions deserve our fullest attention. As Maya Angelou said, “when you know better, do better.” The House knows better, thanks to the tireless work of the hon. Member for Edinburgh South West, and the Bill will help ensure that we do better too.
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Secure 16 to 19 Academies Bill
I rise to express the Opposition’s support for the Bill. I thank the hon. Member for Cramlington and Killingworth (Emma Foody) for bringing it forward. I note that my hon. Friend the Member for Christchurch (Sir Christopher Chope) was not so keen for me to make the most of the time available, so I do not intend to. As was noted during the earlier stages of the Bill, this legislation largely mirrors a previous Bill introduced before the election by my hon. Friend the Member for Sleaford and North Hykeham (Dr Johnson)—my office neighbour, as it happens. Although the previous Bill did not complete its passage, I pay tribute to her dedication and clear commitment to improving outcomes for children in custody. She laid the ground work for the Bill we are debating today, and I have no doubt that she will be pleased to see it return to the House with the support of the hon. Member for Cramlington and Killingworth. Secure 16 to 19 academies, also known as secure schools, are a new form of custodial provision, with education and rehabilitation at their core. They represent a much-needed shift in how we support and care for young people in custody. The last Conservative Government introduced the first secure school, Oasis Restore in Medway. The evidence shows that smaller units that focus on education, health and the root causes of offending are the most likely to reduce reoffending. By helping these children—and they are children—to turn their lives around, we can make sure that everyone is safer in the long run. Secure schools are not typical educational institutions, and it is both appropriate and necessary that different legal and procedural requirements apply to them. The Bill makes a number of changes to funding and consultation requirements, which are all eminently sensible. Although we agree with the Bill’s provisions, we would welcome reassurance from the Government that the schools will be properly funded and supported, and that appropriate steps are being put in place to ensure that young people in custody are properly supported to reduce their reoffending. If secure schools are to succeed where other parts of the youth estate have historically struggled, they must be properly resourced, effectively led and rooted in strong local partnerships. We would be interested to hear more in due course about the Government’s long-term vision for the youth estate. What further plans do they have, if any, to open any new secure schools? What future role do they see young offender institutions and secure training centres playing? How will the Government ensure that partnerships with health and education providers are strengthened to maximise the impact of this reform? I would be grateful if the Minister could make some remarks along those lines. This is a practical and proportionate Bill. The Opposition support it and look forward to seeing its progress.
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Disabled Bus Passes
I have been waiting with bated breath to see if the hon. Gentleman would come on to companion bus passes. I thank him for the leadership he has shown on this issue and for co-tabling—with me, the hon. Members for York Central (Rachael Maskell) and for Epsom and Ewell (Helen Maguire), and the inimitable hon. Member for Strangford (Jim Shannon), who sadly is on his way to Northern Ireland this evening—early-day motion 1638 specifically on companion bus passes for the disabled. This is where a disabled person cannot use a bus alone. We have the strange situation where in two-thirds of authorities his or her disabled bus pass is allowed to cover a companion to go with them, but in one-third of local authorities it is not. I cannot think of anything more futile than giving a free pass to somebody to use a bus service which they cannot use without a companion for whom they have to pay.
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Disabled Bus Passes
The Minister, I think, has conceded a key point: he has admitted that some duties are discretionary to councils, and some are statutory. The point about companion bus passes for those disabled people who cannot use a bus without a companion is, as early-day motion 1638 makes abundantly clear, that inclusion of the free companion bus pass should be statutory specifically for those disabled people who cannot use their bus pass without a companion. There is nothing discretionary about that; they simply cannot use the bus pass without the companion. Therefore, it should be part of the same statutory element by which they get the free bus pass in the first place.
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Resident Doctors: Industrial Action
I have known the Secretary of State a long time. I knew him before he was an important man—although he was always important to me, of course. He will know that as a Minister, I worked with the trade unions in every sector for which I was responsible, as the RMT and the University and College Union will confirm, and I was also a member of the Association of Teachers and Lecturers. I entirely endorse and amplify what he says. Responsible trade unionism requires people to be reasonable, and reasonable people in this House know that this strike against this background is entirely unacceptable, as he has described. I ask the Secretary of State this: will he ensure that this unhappy, unwholesome and unhealthy action does not jeopardise the health of my constituents, and will he write to the local authorities—the integrated care boards—in my area and others to set out how they can minimise the impact of this action? The last thing that you want, Madam Deputy Speaker, or that I or any Member across this House wants, is for those at risk to be put at greater risk as a result of this irresponsible action by these militant people.
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Children’s Social Care
I am immensely grateful to the Chair of the Education Committee for the way she has introduced the report and the work she has done. I am particularly moved by what she said about disabled people, and I wonder if she would look at the relationship between that and special needs education as there is a close association between the two. Will she also look at the issue of the quality of parenting? I was at a school in my constituency just a week ago, and I was told that children are presenting to school really very poorly parented as that is related to the subject that the hon. Lady has studied. It is not all children, of course, but too many are suffering in that way.
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Points of Order
On a point of order, Madam Deputy Speaker. You will not know this, but I have learned that independent experts have advised that Lincolnshire police are now at real risk of having to issue a section 114 notice—the equivalent of a public body declaring that it can no longer balance its budget. It comes after a long campaign, run my myself and colleagues, about Lincolnshire police funding more generally. Has the Home Secretary advised you on whether she intends to come to the House to address that, for the people of Lincolnshire are acutely worried that policing services in our county will cease to protect them from the risk and reality of crime and disorder?